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No wine or Cheese or Meat

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by

Tracy
in

Two Truths and a lie*

Well, It’s been two months and now I am starting to get pissed off. I still have pain all the time. Sometimes badish, sometimes it is okayish. But I was really hoping to try the no pain thing.

It is my liver. On the good days it feels like a sunburn on the inside of my skin. No other way to explain it. On the bad days, well, it is worse. When it is bad it hurts to breathe, quite a bit. I cannot take deep breaths because it pushes my diaphragm into my liver. This weekend my FitBit became quite concerned about my breathing rate.

Friday I felt a little off. Saturday morning I had a headache and it was definitely a baddish pain day. Saturday by 3pm I had a fever of 102. Why? No idea. It stuck around all night and then this morning I felt almost normal except my fingers, toes and the tip of my nose are like ice.

I do tend to get fevers when anything goes wrong inside my body. Luckily I am not a vomiter!

I will be very curious to see what my CT shows next week. I am scheduled to restart chemo in two weeks and I have to be honest that scares me a lot. I feel like we are getting close to quality of life questions vs longevity. But if the chemo is permanently damaging my liver how much longevity will I have?

About 4am my fever broke and I was of course drenched in sweat and my heart monitor (two more weeks) disconnected. That will wake you up!

I am really ready for this to all be on a more even keel. In the good news I have gained my weight back and my muscles are slowly starting to build.

  • of course I am still eating cheese! Not a lot.

Comments

4 responses to “No wine or Cheese or Meat”

  1. mb Avatar
    mb

    Hi! I have been wondering how your liver was treating you. I wanted to ask but I was giving you time to be ready to talk about it.

    You probably already saw my note that my gmail is hiding your notifications. That made me really angry. If I don’t comment, know it is because I just didn’t see the blogs. I feel bad. I don’t want you to think that I don’t care.

    Have you talked to your doctor about the pain? I suppose you will talk to them after your ct scan. Are you seeing a hepatologist – liver specialist?

    I am really sorry you are dealing with pain! Liver area pain is the worst. I am sorry you are dealing with it. Maybe pay attention to what you are eating and how the pain reacts to different foods. Too much sugar, salt and meat but you don’t eat meat seem to affect me. Coffee is supposed to be good for the liver. I have never been able to drink the stuff but you might want to see how you feel after drinking coffee.

    Love and hugs! I am hoping you find pain relief!

    Reply
    1. Tracy Avatar
      Tracy

      Good Morning! We always know how to find each other so you don’t have to worry about me feeling uncommented on. 🙂
      Today is blood work for the CT and also blood work for the GI dr. The CT is for the oncologist. Right now for the liver I am only seeing the GI as we kind of figure out where things stand. She will see the CT but it is not her order.
      I am still in the midst of dealing with too many drs! This morning I spent 10 minutes trying to figure out the confusion of having two sets of standing orders with two different cardiology practices. It was ridiculous. I think I am down to one now.

      I am paying a lot of attention to what I eat and so far not happy about it at all! But, I will get there. Food has always been such a thing for me, for different reasons. I hate having to think about it.

      Reply
  2. mb Avatar
    mb

    Once a person gets sick they should be assigned an assistant. Those phone calls are so tiring.

    Craig often says that it would just be much easier if we just had food pellets. It would be so much easier.

    Reply
    1. Tracy Avatar
      Tracy

      I believe I have said almost those exact same words. I mean, I have a multivitamin. Why can’t I have a multi food gummie?

      Reply

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